Archive: May 2017

  1. The Hashtagversary of #DisabilityTooWhite

    Leave a Comment

    Image of a drawn character in a wheelchair wearing a cone party hat against a solid black background. To the right of the character reads the words: "It's a hashtagversary!" Underneath the character reads the words: "#DisabilityTooWhite"

    Today is the hashtagversary (hashtag anniversary) of #DisabilityTooWhite.  I cannot believe it has been a year since the hashtag went viral, and how it changed my life and the dialogue in the community.  

    It still astounds me that something I created from an impassioned reaction to an article stirred up so much conversation and controversy.  The hashtag forced me, and others, to discuss the elephant in the room – the racism, invisibility, erasure, lack of representation, and othering of disabled people of color.  Our community can no longer feign that we do not recognize the inequality that exists within; the hashtag has the “receipts” of the injustices enacted on those of us multiple-marginalized.  The hashtag allowed people to understand that they are not alone in how they have been mistreated, abused, and ostracized in the community.  That realization validated their feelings and experiences, which was a powerful confirmation so many received.  

    (more…)

  2. #IAmAPreExistingCondition: Medicaid is the Lifeline that Saved Me

    Leave a Comment

    Image of a stethoscope and pen lying on top of a medical chart.

    I owe my health and ability to live in this disabled body to Medicaid.  It is the social program that is will be under attack if the Senate accumulates enough votes for the American Health Care Act (AHCA).  The AHCA is the replacement bill for the Affordable Care Act (ACA), better known as Obamacare.  There are provisions within the AHCA that will impact those of us with pre-existing conditions and/or utilize Medicaid.  

    The disabled community, including myself, have been very vocal as to the harm the AHCA could cause for us.  I’ve taken part in discussing my own story & urging our Senators to vote “no” by using the #IAmAPreexistingCondition hashtag, and being interviewed by Al-Jazeera along with other advocates about the bill (click to view Part I and Part II).  

    I wanted to share the article I wrote for the Center for Disability Rights this month that outlines why Medicaid matters so much to me, and why the AHCA would be dangerous for my people.  We need more disabled voices proclaiming that healthcare is a human right that should not be deemed as an optional circumstance to acquire.  

    (more…)